Monday, May 31, 2021

Light at the end of tunnel.


When we received the news, we are devastated, but as parents with positive attitude, we approached it as we given a golden opportunity to cure our daughter and we decided not to miss the chance . What other option was there but to become expert caregivers and advocates on behalf of our sweet child? We want to be sure we are giving the best and taking the right decision. 

We prepared to carryon Bone Marrow Biopsy for Mahiyaa and we too managed to seek opinions from four other Paediatric Haematologist and Oncologist from all over the country with the help of our family and friends from medical background. After 3 days, the biopsy result confirmed that our princess having B Cell Paediatric Acute Lymphoblastic Leukaemia and needed immediate medical attention .The Dr shared with me the chemotherapy treatment sequence and asked us to be patient while identify the possible risk in this diagnosis to increase the remission rate which the result we will be receiving during the induction treatment.

She was put on hypertensive hydration treatment via IV to reduce the risk and complication of tumour lysis syndrome during her treatment for the cancer where large amount of tumours are killed off. As she was having gigantically super high rare white cell count in her blood, the acute chemo treatment may damage her kidney, liver or  potentially fatal complication and Mahiyaa should be closely monitored before ,during and after the courses of chemotherapy .

We have to stay in hospital another 10 days. During my stay with her I slowly explain Mahiyaa  about her diagnosis and the reason for our stay in the hospital. I explained her that she have very bad bacteria in her blood which make her severely ill and I need her to be really strong to help the doctors to kill the bacteria with medicines. Her innocent face turned very fury as she was angry with the bacteria which make her stay in hospital longer keep telling she will fight the bacteria. She misses her younger brothers Kayhan Bala (4) and Deehan Bala (2) and her Virtual Classroom Friends. How I explain her that she is fighting even more deadliest disease than a bacteria? 

 

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